These last 2 weeks have been emotionally fraught and we feel like we're trapped in an impossible situation. Little monkey had a very long, dangerous seizure in July and since then the doctors have been trying various medications. But it's taking its toll. At school they've had a series of angry outbursts where he's lashed out at staff and children, scratching, biting and kicking. They've had to adjust the staffing to cope because there has been a huge increase from last term.
So now we're stuck between wanting to have his seizures stopped because they're potentially life-threatening or living with him lashing out every time he gets cross. Luckily for us he is a great special school and they are being very supportive. The consultant wants us to give it another 4 weeks and see if it settles down. The drug does seem to be having a positive effect on his epilepsy, but can we handle the side effects?
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